For those of you who are new to Casey's Cure, let us tell you a little about us.
The Foundation for Casey's Cure has a multifaceted mission:
The Foundation for Casey's Cure has a multifaceted mission:
- To be an advocacy platform for patients with rare forms of Muscular Dystrophy
- Create a registry for HMERF patients and other rare forms of Muscular Dystrophy in order to compile a database of affected patients to support any possible research/clinical trial information.
- Promote research on rare subtypes in the US and global research circles to be shared widely and collaboratively among and across all scientific communities.
In order to promote research, a foundation has to (1) find the researchers interested in looking at a new disease. Then (2) the foundation must raise $$ to fund that research,
When we began this quest, we thought finding researchers would almost impossible! But as luck and God would have it, a relative, who spent his life dedicated to research, reached out to his community and within 30 days, we had THREE sets of researchers very interested in studying Casey's genes. Home run, right???
Well, the hardest part is where we are now: collecting donations, large and small, that will fund her trip to the researchers in Arizona who are ready to develop a stem cell treatment just for Casey!
But.... we need more than one hundred thousand dollars to open a new research 'grant' that will conduct the work.
But.... we need more than one hundred thousand dollars to open a new research 'grant' that will conduct the work.
Please consider a $25 monthly donation to keep us moving toward that flight to Arizona!
Each and every dollar gets Casey one dollar closer to ARIZONA! Stem cell researchers are waiting for her!
The Foundation for Casey's Cure, Inc. is a federally approved 501(c)3.
Our EIN#: 84-3487838
Tax deductible donations can be made through several sources.
Every dollar raised will be used to fund our mission, which is to promote awareness and find additional patients in order to fund research on the rarest forms of muscular dystrophy. All research will be made publicly available to any and all interested parties because muscular dystrophy of all strains needs to be wiped out in our lifetime.
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Checks: The Foundation for Casey's Cure, Inc. also accepts checks. Please make your check payable to:
The Foundation for Casey's Cure, Inc. 162 Wellington Drive LaGrange, GA 30241 |
Zelle: The Foundation for Casey's Cure, Inc accounts are held at Bank of America, a direct participant in the Zelle network. Money is transferred directly from bank to bank through a secure inter-bank network. (Fees may apply so please read their fee disclosure here.)
You can find us by using our email address: caseyscurefoundation@gmail.com |